Showing posts with label facing your illness. Show all posts
Showing posts with label facing your illness. Show all posts

Tuesday, January 12, 2010

My Little Everest

This post was written in December 2009, when I was spending a month staying at a Buddhist monastery near Sydney, Australia.

Monday 7th December

Yesterday I had a long chat with one of the monks who live at this monastery, and it turned out to be very helpful.  Because I’m usually housebound or bedbound with my illness I can’t get out to meditation classes, so I’m pretty much on my own as far as meditation instruction goes. Being able to come to Santi Forest Monastery for a few weeks, and have people I can talk to about meditation is so valuable.

I first got in contact with this monastery through telephone.  I rang, talked to the Abbott, and then rang him every few weeks to ask meditation questions.  I was very embarrassed when I met him to find out what an esteemed and extremely busy Abbott he is – to think I was bothering him with my oh-so-basic meditation questions still makes me cringe a bit.  After the second or third phone call, he said that I could come and stay at Santi if I wanted to. He said I didn’t have to attend breakfast, morning meetings, or do any work – I could just come as I was and do whatever I was able to do.

This was a big challenge for me – firstly to summon the energy to get to the monastery, secondly, to deal with the shame I felt at not being able to get up early,work, and meditate like everyone else, and, thirdly, to overcome the fear at spending 6 weeks with no distractions – just me and my illness. I had spent the past 10 years doing everything I could to avoid feeling my pain, and now it was just going to be the two of us for 6 whole weeks!  How romantic – me and my Chronic Fatigue Syndrome in a little hut in the woods.

It turned out to be even tougher than I thought it would be.  I got very sick after I arrived and struggled even to get to the main midday meal and have a shower.  All I seemed to do was lie in my bed in my little hut and cry.  I felt like I was in prison. Looking at the people around me all I could think was, ‘What are you doing here?  Why do you seem so happy...this is hell!’ Whenever I talked to the Abbott I’d cry, and I kept thinking that he must be thinking, ‘Why did I ask this crazy woman to come here?!’

I vividly remember talking to him just before I left. I apologised for spending the whole 6 weeks in tears. ‘Don’t worry,’ he said, ‘Every monastery needs someone who just sits in the their kuti [hut] and cries.’ I smiled with relief, and we both laughed.

‘You’ve done a good job, ‘he said.  Somehow I knew that he was being completely sincere - although, if anyone else had said this to me I wouldn’t have believed them. I felt that he really did think what I’d done was difficult, and I’d done well in persisting with it.  I have to say I agreed with him – I certainly didn’t feel any better physically, but I knew that in facing my illness head-on I’d climbed my own little Everest.



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